There is an organization that I wish with all my heart I had known about when Ethan was born. It is called Now I Lay Me Down To Sleep. They are a non-profit organization with professional photographers who volunteer their time and talent for parents in situations similar to ours. This song is beautiful and expresses such true emotion. I hope that you will take the time to watch.
Check out this video: Smallest Wingless Live (1.6.07)